A recovery update

A photo of a jar of calcium and vitamin D supplements, and a box of Levetiracetam tablets

It’s been four weeks since I last wrote about my recovery, following my seizure in May. Because August is my busiest month at work, most of this month’s blog posts were written in advance and so I haven’t talked about what has happened with my health since last month. Things have happened and so it’s about time for an update.

I had a third seizure

Earlier this month, I had seizure number three. Number one, as mentioned, was in May and resulted in me breaking both my arms; seizure number two was in June. I managed not to have a seizure in July, but then had a minor one earlier this month. Like the second time, I was already in bed, so I didn’t fall and my head was supported. And again, like last time, Christine was there and was able to time it. As per Epilepsy Action’s advice, it’s not really necessary to call for an ambulance for seizures lasting less than five minutes, and once I’d come round, we all went to bed. I even went off to work as normal the following morning, with only a sore tongue from when I’d bitten it to show for it.

I’ve been fine since, although my neurologist advised my GP to increase the dose of my anti-seizure medication, Levetiracetam (more commonly known by its brand name, Keppra). I’m still on a relatively low dose for now though. It also, unfortunately, resets the 12 month seizure free period that I need to have to get my driving licence back. So, I won’t be able to do any of the driving for next summer’s holiday either.

I have a formal epilepsy diagnosis

Speaking of my neurologist, I had a call with them at the end of last month, where they stated that I met the requirements for a formal diagnosis of epilepsy. This, incidentally, was before seizure number three.

We’re still trying to work out what is actually causing the seizures, as there doesn’t seem to be a specific trigger. I’ve had two electroencephalograms (commonly known as an EEG or ‘brain wave scan’):

  • a standard EEG test last month, which came back normal and included a strobe light test
  • a ‘sleep deprived’ EEG test last week, where I stayed up all night, and then had the test first thing in the morning. That meant that I fell asleep during the test, and so they could monitor my brain activity whilst asleep. I then spent the rest of the day in bed. I’m still waiting for the rest of this.

Meanwhile, my ENT surgeon is looking at booking me in for an ear procedure that may help, whilst I await the results of another CT scan.

I also have an osteopenia diagnosis

On top of all of this, last week my DEXA scan results came back, showing that I have low bone density for someone of my age. This would likely explain why I ended up fracturing both arms during my first seizure. The medical term for having low bone density is osteopenia, and people with osteopenia are at greater risk of developing osteoporosis if it’s not managed well. I’ve probably developed it partly as a side-effect from having been on steroid-based asthma medication for over 30 years, but being able to breathe is important to me so I’ll take the compromise.

The good news is that osteopenia doesn’t need to be managed with medication – regular vitamin D and calcium supplements are usually sufficient, as is regular exercise and avoiding smoking and excessive alcohol consumption.

I still have some further blood tests to do, just to make sure that there’s nothing else causing my osteopenia that needs flagging up.

My mobility is getting there

I’m starting to regain strength in my arms, and my dexterity and mobility is improved. There’s some way to go before things are back to normal – I still struggle with getting things over my head, and putting a backpack on and off is a bit of a challenge, especially when wearing a coat. But I can do almost everything on my own now, with Christine just helping a little bit with showering and sorting out my shirt collars, for example.

I’m also in significantly less pain – whilst I’m still taking paracetamol and/or ibuprofen most days, it’s more as a response to acute pain flare-ups, rather than keeping chronic pain at bay.

I’m back at work full-time

I’ve been back at work full-time this month, and worked the extra hours for Clearing as per usual. Whilst I have been a little more tired on an evening than I would have expected to have been before May, I feel I’m coping well.

So I’m getting there. There’s still more tests and procedures to come, but I reckon I’ll be closer to my pre-May normal by the end of the year. I’m already not far off.

Unblogged July

Time for another round-up of things that I’ve been up to this month that I didn’t blog about. As with June’s update, it’s back to being a little longer than May as I’ve been able to do more things as I gradually recover.

Back from Wales

Our holiday in Wales was once again just a week, and so we got back last Saturday – all of this week’s blog posts were written before we left. Blog posts about what we did whilst we were away will start appearing next week, once I’ve had chance to write them.

We’ve decided collectively (our household plus my parents) that we won’t be making it a third year in Wales, having been there last year as well. So there will probably be a ‘what we didn’t do in Wales’ post, like 2024’s Northumberland post, coming later next month.

Returning to the office

Me standing in City Park in Bradford

Another update on my recovery is that I’m back to working full-time hours, and back to hybrid working. This means I’ve successfully managed the commute by train to Bradford and back a few times now, and made it through a work day in the office.

I realise that I’ve touched on this in my review of my OneLife ID wristband but it’s been nice to get out of the house and see my colleagues again. Working all the time at home was okay when we were all doing it (because we had to during lockdown), but when only some of us are at home, it can be a bit isolating.

At present, I’m (mostly) just working two days a week in the office, but this will go up to three days a week from September, as part of a wider policy change at work. To be fair, I’ve often gone into the office on extra days before, so it’s not a huge change for me, and I’m glad that we get to retain our hybrid working privileges.

This week also marked the first time I’ve taken my backpack into work. Since the fall, I’d previously not been able to get the straps onto both shoulders, and so I’ve just had a smaller shoulder bag in the meantime. However, my mobility has improved so that I can finally wear my backpack properly, albeit by putting it on in a rather inelegant way. Still, it’s progress.

Octopus Electroverse Plunge Pricing

On the way back from Wales, we got to take advantage of Octopus Electroverse Plunge Pricing for the first time. When electricity supply is exceeding demand, then public car charging providers who partner with Octopus Electroverse offer a discount when you charge your electric car (or plug-in hybrid). For us, this was 30% – we saved £2 on a quick 15 minute top-up – but can be anything from 20% to as high as 50%.

Generally this happens when it’s particularly sunny and/or windy, and so the electricity being generated by solar panels and wind turbines is higher than the demand. Whilst wind turbines are usually commercially owned and can be turned off (despite this being a massive waste of green energy), energy companies will still pay out for exported electricity from domestic solar installations (like ours). So, offering lower prices for electric vehicle charging gives electric car owners an incentive to charge their cars at a time when supply needs taking out of the grid.

It’s still not as cheap as charging at home, but being able to save a little money is always welcome.

New glasses

I’ll blog about them in more detail when they arrive, but earlier this week I had a routine eye test and found my prescription has changed slightly, again, so I’ll be getting new glasses next month. I’ve been wearing glasses for five years now, and these will be my third pair. My current (second) pair will then become my backup glasses, and I’ll be donating my first pair (current backup pair) to charity.

The four stages of getting better

I’m still getting on with my recovery, and I’m slowly regaining the ability to do tasks that I couldn’t do immediately after my fall. I’ve found that I go through four stages with tasks:

  1. I can’t do it myself
  2. I can’t quite do it myself
  3. I can just about do it myself
  4. I can do it myself confidently

I’m now eight and a half weeks post-fall, and most tasks are at stage 3 and 4 now. The things I can’t do myself involve stretching my arms up – namely, hanging washing outside. Indoors, I can use stepladders to help me reach things, but it’s more difficult outdoors.

There aren’t many things left in stage 2 – things I can’t quite do myself – but dressing myself was something I couldn’t do entirely myself until recently. My main issue was getting my head through t-shirts, and for this I needed assistance.

Stage 3 is when I can do something, but in a rather ungraceful way or with the help of additional tools. To take the example of dressing myself, I found that laying a t-shirt out on a bed, and then pushing my head through it like a cat going through a cat flap, seemed to work. Not graceful, but it gets the job done. Another example would be drying my back; I would lay the towel over the sink so that I could grab it with both arms.

It’s this third stage that has given me some insight into what it would be like to have a permanent mobility issue. I’m hopeful that I’ll make a full recovery, and regain all of my mobility (although it’s not guaranteed). But I appreciate for some, their limited mobility is the best that they can manage, and that’s where mobility aids and various life hacks come into play.

Jumping into July

A photo of Conwy castle taken through the gap in the town wall.

Here we are, into the latter half of the year. I’m continuing to recover, and this month sees us go on our annual summer holiday.

Recovery update

I’m slowly regaining mobility in my arms, following my fall, and I’m generally in less pain now. I’m still not fully back to normal, but may be closer to normal mobility by the end of the month. At least I’ve been able to help out with more of the housework; Christine and I normally split tasks relatively evenly, so a lot has fallen on her.

This month should also see me returning to work in the office on occasional days – until now, all my work has been at home.

I have a bone density (Dexa) scan coming up this month, as for someone to break both arms in the way I did at my age is unusual. I expect it won’t show anything concerning but my GP wants me to have one anyway.

Summer holiday

In the latter half of the month, once the schools have broken up, we’re off for a week’s holiday in North Wales. We’re actually staying in the exact same place as last year – it was nice, convenient, and there are plenty of things that we didn’t get to do last time. In fact, my potential to-do list has enough for a potential third holiday next year, although I doubt we’ll make it three years in a row.

Weather permitting, we’d like to go up Yr Wyddfa (Snowdon), although we’ll probably be taking the train to do so. We also plan to go down some kind of mine one day, and visit the Welsh Mountain Zoo.

As I’m not currently permitted to drive, Christine will be doing all of the driving this time. Which part of me feels bad about; however, I did all of the driving on our 2018, 2019, 2021, 2022, 2023 and 2024 holidays, so maybe this will help balance things.

New tech

I mentioned at the start of the year that we’d be looking at getting a replacement laptop for home use. Christine bought one earlier this year, and now I have one on the way too so that we each have our own device. I’ll blog about it once it has arrived and I’ve had a chance to play with it.

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